Today, we made a trek down to DuPont, Ohhh the joy with this drive :/ The reason? Ryan had a follow-up appt. with his orthopedic surgeon. It went well, all things considered that have been going on lately. I told the ortho. dr. that Ryan and everyone in our house are sick right now with an upper respiratory infection :/ And, that 3 out of 4 of us in our house were on antibiotics :( I told him that when Ryan gets sick he gets sick, as in not himself, uncoordinated, etc. Also, what scares Ron and I most is that when Ry has his breakthrough seizure activity he gets like this too BUT in a different way...so difficult to explain, in all honesty you truly need to witness it for yourself. However, with that said, it is our belief that Ryan is adjusting to his meds well, minus the side-effects of course, and we believe he has not had another break-through seizure since the last one. The ortho. dr. brought up an excellent point...that the reason for Ryan's lack of coordination is perhaps b/c he is growing, height wise, and having trouble adjusting to the new height growth?! I was amazed that I hadn't thought of this and yes, I do believe that this very well could be the case. We will watch and see. According to Ryan's ortho. dr. he would like to push back his hamstring surgery to Summer time, this way in case he grows (which is bound to happen b/c he's just an 8 year old boy) he can adjust to it, as best as his body will handle it. B/C he seems to grow in spurts, as we all do. Also, we are not putting any undo stress on Ry's already fragile body. The ortho. said he won't miss any school either :) Which may or may not stink for the pool this Summer :/
On the stuttering issue, which as you may have read on our blog, we believe is being caused from Ry's seizure meds. I received a call back from Ryan's neuro. and she said that the DNA questions that I posed are definitely questions that genetics at Dupont could answer for us. I simply told her the reason we were contacting neuro. in the first place? Was b/c it was dealing with his seizure meds. and if not start with neuro. then who should we start with? Neuro. told me this was great reasoning but genetics would be able to better answer the questions we put forth. So, to make a story short, Ryan has a genetic appt. on April 4th...hopefully they will be able to find out if Ry is predisposed to stuttering. I would LOVE to have any biological info. on our boys, especially Ryan. Here is a website on the genes that were recently found that predispose you to stuttering, http://www.sciencenews.org/view/generic/id/56232/title/Mutations_may_underlie_some_stuttering.
Love & HUGS,
Jenny, Ron, Ryan & Lukey :)
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