A day spent at DuPont Hospital...

Honestly, my head is still spinning!  We had two extremely important dr.'s appointments for Ryan on Wednesday, October 20th.  Each equal in the weight of importance and it was anything but easy.  Our time spent at DuPont was overwhelming and daunting.  Ryan seizures are now known as "Progressive Myoclonic Epilepsy" b/c they are changing how they present. His neuro. no longer refers to him as having "Myoclonic Epilepsy". His seizures use to present as "hiccup like episodes" and now they are presenting as "laughing spells". The neuro. has once again upped his meds and it was explained to us (both Ron and I) that his neuro. truly does want Ryan to be seizure free and unfortunately this is the only way they can do it :(


Then, it was on to Ryan's ortho. dr. where he went over every little detail about Ry's Gait Lab experience. I will say I was fascinated till he started to say those dreaded words, "Ryan does require surgery"! Apparently, Ryan has moderately tight hamstrings and needs hamstring lengthening surgery. The good news is that he doesn't need the surgery right away. His ortho. dr. said sometime in Spring would be great.


We traveled home from Delaware in silence, maybe each of us needed that silence to regroup?  Once, we were home we literally kissed the boys and we were off running again to an Epilepsy Conference.  It was an awful amount of traveling we did on that day but who knew that the last event we attended would be the most rewarding?!  I learned more at the Epilepsy Conference than from Ryan's current neurologist.  It was absolutely fascinating, and it is mind boggling thinking about the different types of seizures that men, woman, and children experience on a daily occurrence.  It was gratifying to be a part of this event.


Love & HUGS,
Jenny, Ron, Ryan, & Lukey :)