Break Through Seizure Activity

I want to write that everything is going great in our lives...but the truth is-it isn't :(  We are almost 99% positive that Ryan had break through seizure activity on October 5th and October 16th.  Its extremely difficult to pin point when Ryan has a break through seizure that if you blink and don't realize what you are watching you will miss it and just go on as if it were nothing...maybe just some behavioral issues or him being "funny" or having these laughing spells.

On October 5th, I get a call from the school that Ryan had an accident, which is not like Ryan at all!  I thought nothing of it, went into school brought a change of clothes and that's it.  It wasn't until the next day, when I read the most disturbing news and realized Ryan did have a seizure!  I received an email from Ryan's resource teacher (who I adore and Ryan does too, she truly is the type of person who exudes care) that Ryan was acting "funny" almost drunk like she said to me in this email and then she realized he became incontient and had an accident.  He doesn't remember any of this.  His neurologist upped his meds...once again :/

Then, on October 16th, we went to Ryan's Trail-A-Thon at Shadow Equestrian, which Ryan was excited for but at the same time he wasn't acting like himself.  Again, he was acting as if he was drunk, the fact that everything everyone said was funny, his legs were jelly, and he kept on falling.  To make a story short, we eventually went to the CHOP's ER and trust me if I had to do it all over again we would have went to DuPont :/  CHOP's ER couldn't or wouldn't do anything for Ryan, b/c Ryan was not in any distress once we arrived at the ER.  The attending physician told us, short of reinventing the wheel there is nothing we can do for him-AHHHH WAS SHE KIDDING ME???  We walked out of there just as clueless as we walked in, not a good feeling!  CHOP suggested we call Ryan's regular neurologist on Monday and explain to his scheduling department that we were in the ER.  I did follow this advice and we see the neurologist on Wednesday.  Also, we have Ryan's Gait Lab Analysis on Wednesday...can't wait...stay tuned!

Enjoy some photos of Ryan at his Trail-A-Thon, even though everything was a mess that day he did do a spectacular job on his horse, Shadow!  He received a trophy and a ribbon, he's all about the trophy and the ribbon :)

Love & HUGS,
Jenny, Ron, Ryan, & Lukey :)